Subgroups – 1.7 | Patients & Caregivers – AIiHC ORG

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1.7 | Patients & Caregivers

Public Stakeholder connect

Public Stakeholder connect

Active 3 months ago

Purpose: For individuals impacted by AI in healthcare and patient advocates to share their... View more

Public Stakeholder connect

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Group Description

Purpose: For individuals impacted by AI in healthcare and patient advocates to share their personal experiences, concerns, and perspectives.

Description: This group provides a safe and supportive environment for patients and their caregivers to discuss how AI affects their diagnosis, treatment, care journey, and their rights within the healthcare system from a lived experience point of view.

Intended Use: For patients and caregivers to:
Understand AI’s role in their care and health management.
Share personal stories and insights related to AI’s impact.
Advocate for patient-centered AI development and deployment.
Discuss concerns regarding data privacy, transparency, and fairness of AI from a patient perspective.

Limitations:
NO MEDICAL ADVICE: This group is not for providing or seeking individual medical advice, diagnosing conditions, or discussing specific clinical treatments. All medical questions should be directed to a qualified healthcare professional.

No Commercial Promotion: Strictly non-commercial.

No Technical Deep Dives: Discussions about AI model technicalities or IT infrastructure are out of scope.

Key Activities:
Sharing personal experiences (anonymized if desired) with AI tools in their care journey (e.g., AI in radiology, AI in scheduling).
Discussions on patient rights, autonomy, and ethical considerations in AI use (e.g., bias in diagnosis affecting specific populations).
Advocating for greater transparency, explainability, and human oversight in AI decisions affecting patients.
Sharing resources for patient education on AI in healthcare.

Potential Users: Patient/Caregiver, Patient Advocates (can be Clinician, Healthcare Leader, or Policy Expert with an advocacy focus).

Possible Discussions: “How did AI impact your recent diagnostic process or treatment plan?”, “What questions should patients feel empowered to ask their doctors about AI-driven care?”, “Ensuring truly informed consent when AI is involved in your care journey,” “The role of AI in empowering patients to manage their own health.”
Other Important Notes: This group is critical for bringing the patient voice directly into the AI in healthcare conversation, ensuring that human-centered design and ethical considerations remain paramount.

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